It's been a madhouse, trying to get ready for Weslee's admission into the Cleveland Clinic. Not only making sure my mini van will get us there and back, but also that we have a decent hotel room for that first night, doing all of the pre-admission paperwork, med list and instructions before we even see anybody on his admission day.
Then of course, there's the packing. The decisions on what work I want to take (ok, taking all of my books in the hopes to finish at least one!). And the meals. It's just so much.
But I did just find out yesterday, that despite being told we will have a microwave and refrigerator in the room, we won't. If I want to use a microwave or fridge, there's one in a special room by the nurses desk, I think.
So I had to figure out alternatives because I need to be with Weslee so that I can push the button every time he has a seizure. Can't be running down to that room for another bottle of cold water, or a soda for W. So, of course, that meant changing what I had planned to eat that week. (I now understand now that Cleveland Clinic is a low sugar low fat facility, so Weslee will not be able to get any snacks.)
Today we went and got all of our hair chopped off. Weslee is completely bald, again, because it makes it easier for the electrodes to be glued to his head. And I cut my waist length hair to almost a pixie cut. It's been many many many years since I have had short hair, but I'm tired of fussing with it. And I'm getting so very old, that long hair just doesn't suit me anymore. (This short cut revealed so much gray... geez, I am old.)
Anyway, a couple more days and we will be gone.
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Note: I did this painting the other day for my blue ephemera book. W said he likes it. Ok. Unusual.
