Apr 16: Minecraft vs Busy Busy

Today, one of the best friends ever to cross into my life ... she took Weslee to see the new Minecraft vid.  He always takes his rescue meds and a bottle of water. They made it through the movie and end credits, picked up lunch and came home. Not 30 minutes went by before a seizure cluster started. Well, fun while it lasted.

   

VS

I had plans for my few alone hours, but pain attacked. So, first I took some pain meds then took a nap. A glorious 2 hour nap. Then I went to my craft area, where I painted wall decor / coasters, and checked my Easter scenes.  (Too late to list on etsy now).

Might list them anyway.

Well, my pain is slamming back. Pain pills don't work very well on me anymore, so I am gonna go to bed!

.....

Please help with Weslee's medical and related expenses, then share the link(s) everywhere. Check out the GoFundMe ...  https://www.gofundme.com/f/r8wuy7-help-weslee-and-family-with-medical-expenses

Here is the GoFundMe tiny URL: https://tinyurl.com/bdccbkpj

...OR...

If donatìng through PayPal is easier...Click here.  

Thank you.

Small Cluster of Seizures Followed

Because of his lack of sleep the night before, yes, Weslee had small pockets or clusters of seizures. I can only say I am thankful none were tonic-clonic (grand mal) or the other bigger ones.

He was still tired when he got up, but couldn't nap. I don't MAKE him nap, but having constant misfiring in the brain can drain a person.

In other news, my increased rent just took effect. I had to weigh the extra $150 per month with the cost of moving. Staying won out. That leaves us only $450 per month for other expenses, like meds, co-pays, food, utilities, etc. I guess I can forget about necessary car repairs. Or insurance.

One more quick thing: I will be so relieved when I can finally get a resolution for one of my bleeding issues. Hope today's appointment is a step forward for that.

Well, it sounds like Weslee is up and cranky, so have a great day.

Exhausted

Weslee gets so tired during the day from constant seizures that he often needs a nap. Voluntarily.  I snapped this pic just a bit ago. He put himself to bed early, right after evening meds.

This sweetie is losing hope. He is being bombarded with tiny seizures all day. We think they are simple partial seizures but he can't really describe them.

Weslee is getting very sad about the possibility of never feeling any better, and about being stuck in a safe place for the rest of time. 

I hate that. This. All of it.  I want my sweet, happy, loves-life kid back.