Jun 30: Galaxy

We had an ok day yesterday. No big seizures or clusters ... just an average day of simple partial seizures (seems like deja vu episodes to him) and chllin'.

He slept a bit longer than usual, then worked on writing a book (hello there, apple!). Barely ate, which continues to worry me.  Watched a lot of vids, and had a nice phone chat with an online friend.

Since we weren't really arguing and to kerp it that way, didn't mention that he REALLY needs a shower. It is like pulling teeth to get him in there..

For me, I ordered some of his meds, cooked, hung up laundry, went through bookmarks I made to figure out what I'm doing (will post to sell soon). Worked with sculpting resin pieces, and produced some resin galaxies / cosmos door-and-wall decor. As you can see in the pic, not my best work. Not even close to my vision. Will redo them over the next week or so .. now... where did I put my notes?

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Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.

Jun 18: Why I Am So Purple!

I have written bits and pieces about why I go by "That Purple Mom" but since I am in the process of revamping my epilepsy book series, thought I would add a bit more plus do a short vid.

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Here is a quick intro to why I am called "That Purple Mom". It begins and ends with my son.

Weslee.

His first seizure (that I know about) was a tonic clonic less than 30 days of him being diagnosed as autistic. Scared me so much that I can still hear and see it clearly in my mind, 14 years later.

Just like the smell of brain fluid never quite leaves your memory.

(We did discover that he had been having simple partial seizures for years. They presented as episodes of de ja vu, although many more than the average person. Every doctor that I mentioned it to poo-poo'd it. It wasn't until I researched seizures that the puzzle pieces clicked in to place.)

So many of us caregivers, especially when we are family members, get diagnosed with PTSD.

November 2013 (about 6 months after his first 2-step brain surgery), I decided to wear purple EVERY DAY to help promote awareness about seizures and epilepsy. People would comment about it, and I would give a quick sentence or two.

I always have purple on me, even when I was in the hospital (purple frames for my glasses and purple temp tattoos). It gets a tad tedious after all of these years, but it is nothing compared to people never knowing when a seizure will hit.

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My books are available on Amazon.com, or through here. Thank you for your support.

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Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.