- Weslee is my 28 year old son.
- Weslee is high functioning autistic. Mentally, psychologically and emotionally, he is only 12-14 years old.
- Weslee has lots of holes in his memory, mostly from seizures and brain surgeries.
- Weslee had his first brain surgeries in 2013, leaving him partially blind in both eyes, walking with a cane, and a sharp temper.
- Weslee had a SEEG surgery on May 1 2019, which brought on a stroke, a coma, and a ton more challenges.
Add in that:
- I, as his mom, am his only caregiver. My husband (not his bio dad) is still in Colorado.
- I have many health challenges myself.
- I too have a short temper.
- As the adult, I alone am concerned and scared that I won't find enuf funds for his next surgeries. Or that he will die from SUDEP.
I try to treat Weslee like an adult, give him space and privacy. He has chores, like taking out the trash and emptying the dishwasher. He does his own laundry, and generally grabs his own 'snack meal' (Will discuss some other time.).
But when he is in a rotten mood, like from being bullied online, he can turn on the tantrum quicker than ...well ... something quick.
I try to walk away from the confrontation but when I can't, I explode. KABOOM!! Seriously. I'm talking nuclear.
Which causes him to one-up me.
I pay the price of walking away because when I can't / won't, that is still more anger and frustration that I have to push down and bury it PLUS now the guilt for doing so. The guilt eats away at me. How dare I yell at him? Who cares about making him take the bags down to the dumpster, after asking, prodding, reminding daily??? What does it matter?? Really, in the scheme of things.
Would be simpler to just do it myself.
I am close. So close to giving up.
And I am so so tired.
Sorry. Just a ramble.
Please help with Weslee's medical expenses. Click here. Thank you.
