He is 27, going on 13, dealing with not only the constant seizures, but also autism, OCD, ADHD, partial blindness, Swiss-cheese memory, limp (from stroke), shunt in brain (also from stroke), etc.
He is becoming despondent. So, I 'encouraged' his medical team to recommend us getting another opinion. They referred us to the Cleveland Clinic, about 6 hours' drive from here. It is coming up soon.
This is how I have spent the last several business days.... trying to get Weslee and I to the Clinic for his seizure consult.
Let's see... what have I arranged thus far.
- CAR: The repair of my brakes will cost close to $3,000, and they won't put a 'band-aid' on them. Rental may be almost as much, especially since I don't know exactly how long we will need it (8-10+ days).
- GAS: My sister's sister-in-law is promising a gas card with a little gas money loaded on it.
- HOTEL: Hopefully only need it that first night, then I will sleep on the couch in his room, once he is admitted. Weslee will, of course, have his hospital bed that he will pretty much be confined to.
- MEALS: His are covered once he is admitted. Mine won't be at all. Microwave and tiny fridge will be in his room so for me: (1) frequent trips to grocery, (2) bring shelf stable from home, (4) cafeteria, (4) Doordash, or (5) combination of all. Maybe just a bunch of boring protein drinks since I am really overweight. But I eat when stressed. Nevermind.
- BORROW VAN CAMPER: (For trip up and back, and instead of hotel). My feelers haven't found anything to borrow, and can't rent.
So basically, NO arrangements are made.
I am tired, frustrated and feel like I'm falling into a depression. I can't seem to make his life better, or find answers.
And I don't want to cancel his appointment just because I don't have nearly enough donated or in my bank (from my father's estate). The TRUMP puzzle book I have been working on might not be ready in time to help out, and I can't spare the time to work on other projects.
I am open to suggestions.
