Sept 19: Friday Seizures

**Ignore his hands. His seizing brain has no filter or control.**

======

This is Weslee, my 28 y.o. son. He has intractable (uncurable) epilepsy.

======

Two loud crashes / thumps from upstairs had me running to him. After about 20 minutes of seizures (clonic followed by gelastic) in the bathroom, I got him to bed.  This is about 5 minutes later.

This is like the first time I was diagnosed with cancer. That was 2016, and his seizures never really got better, despite surgeries and more. What shape will my new diagnoses take in his life??

........

Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share... PLUS .. please go to his Medical GoFundMe or to our Paypal ... AND please visit my etsy shop at www.etsy.com/shop/VikkiLawrenceShop .. Thank you.

Jul 22: Cluster of Seizures

Weslee hadn't really had many bad seizures lately. Some absence, some simple partial.

I was upstairs whrn I heard a crash downstairs. By the time my tiny brain woke up to remind me what that sound was, he was coming out of it. And unfortunately, had just opened a bottle of juice, which I tried to clean up. Seriously, a mess.

It sounded like a clonic or absense (paralyzed) followed by a gelastic.  But at least he didn't get hurt.

I made him run up to his safe space (his bed), and in less that 15 minutes, I caught the end of ... something. looked like a kinda short gelastic. I gave him a rescue nasal spray. Had a feeling he wasn't done.

Guess who was right.

(Vid shows the end of seizure #2.)

About 20 minutes after the 2nd one, he had come into the hall outside his bedroom. Started to tell me he was apprehensive about going into the bathroom (to brush his teeth). His voice trailed off. I looked up and started to sprint. He fell backward, stiff as a board, then momentum threw him into bathroom. His back shows the tale. 

He had an absense (or clonic or Todd's paralysis) followed by a drop seizure.

Even on his worse tantrum-ing day, he doesn't deserve this.

........

Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.

Jul 20: Seizures Started Early Today

Not a whole lot to write about lately. Trying to get cool enough to think. Projects underway (pic of an altered paperclip [shaker] down below). Books begging for me to finish writing them. Make short and long plans. Figure out what should I do for W (guardianship, living digs, etc) for when I die. Figure out how to make certain things without resin.

About 50 minutes ago, Weslee stumbled into my bedroom, threw on the lights, and grabbed the bottle of one of his seizure meds to quickly take one. He knows to take only 1 extra.

Me.. Did you already take your morning pills?

Weslee.. Yes, but my brain is going crazy. 

Poor thing looked so miserable, exhausted and discombobulated.

Me.. What kind of seizures?

W.. Medium plus.

Try as I might, he won't use proper terms, so I have to ask questions and guess. Sounds like this morning's were clonic (kind of paralysis), absense and 1 or 2 gelastic.

Should have expected them. We had a bit of an argument last night. It almost always triggers seizures.

........

Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.