Tonight I was passing time, watching YouTube videos while I listened for seizures coming from my son's room. Weslee has been having a lot lately. The video topics ranged from art techniques, crafting with cement, music, travel, etc. My interests are varied.
Why was this important to me? Mark Twain, aka Samuel Clemens, was my 5x-Great-Uncle on my maternal side. My grandmother's maiden name was Clemens. From the vid, after consulting specialists all over the place, the consensus was (1) unknown cause or trigger, (2) keep Jean calm, and (3) the seizures were probably hereditary [genetic] so no cure.
What?!?! Genetic? My son may have gotten this from my mother's family? We (1) don't know the cause or triggers of my son's seizures, (2) keeping him calm DOES help, and (3) ... well, that is still TBD. Weslee's consultation with the Cleveland Clinic seems so far away but they are our last hope for answers.
I can hardly wait until Monday morning to contact his regular epileptopogist here in Louisville with this possible genetic theory. Who knows... we might get lucky.
Video link follows. Go to time: 27:06 for the relevant info.
https://youtu.be/4wfYTCUJSIU?si=5hRJ1_6gJhdNGmcV
Note: if the above link doesn't work, please let me know.
#ClevelandClinic
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