May 14: A Decent Day

I was still feeling pretty rough yesterday so am very thankful Weslee's seizures didn't cluster. It was a somewhat mild day for him, thankfully.  As I slept, he had a typical day ... multiple calls with his online friends, worked on a video he is making (crazy pasta??), and took his meds on time. He didn't eat much (just cereal, I think), so around 9 p.m. I roused myself to scramble some eggs with cheese and served them with a few apple slices. He practically inhaled them so that he could take his nighttime meds at 9:30.

So thankful when he has a decent day, with only a few mild seizures and friendships that aren't "mom"!

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Gave Weslee a haircut on Sunday. It turned out so bad that he wouldn't let me take a pic! Will take him to a professional when I can. Meanwhile, this pic shows what it is supposed to look like!!

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Weslee needs more brain surgery for his seizures.  Please go to his Medical GoFundMe or to our Paypal ... Thank you.

Typical Day for Epileptic

Weslee wakes up at 8:30 every morning. (It's an autism thing). He goes downstairs to eat breakfast (weekdays he has cinnamon Life cereal, weekends he has gluten free donuts and a blue machine juice). He takes his morning seizure meds at 9:30. Goes back to his room, and at 10, he comes into my room for his epidiolex (prescribed CBD) oil. Then he goes back into his room where he usually takes a nap...anywhere from 30 minutes to over three hours.

It doesn't matter how much he slept at night. His average nap is over two hours.

Then at 9:30 at night, he takes his night seizure meds and at 10, his night epidiolex.

I hate that despite him taking six different seizure meds and me tracking all of his different kinds of seizures, times, lengths, symptoms, post-ictal length, etc ... that we (1) can't figure out triggers, (2) can't figure out where in his brain they are happening, despite 12 or so surgeries and much of his brain gone.

Anyhoo...here is a pic I snapped of him napping earlier.