26 May 16: More Drop Seizures

(Pic of this tall guy sleeping. So glad he doesnt have many seizures while sleeping.)

I know .. I know. It's been a while since I posted but thought I would update now.

Weslee has seen the spine specialist for those 4 spine fractures from his Apr 24 fall down the stairs during a seizure. Confirmed the fractures and admonished him to rest for 6 weeks and let him heal.

 Yeah. Right.

And of course, he won't.

He has had a lot of seizures (mostly drop) lately but I cant always catch him. Two happened in his bedroom; I couldnt get to him because his body was right agaimst the door, blocking me.

One hit him at the bottom of the stairs. I tried to catch him. Was too far away. At least he WASN'T on the stairs this time.

Anyhoo ... he really needs those surgeries at the Cleveland Clinic; my car still wont make it there and back. People want value for their money (donation) so here shortly, I will be adding products to my etsy store.

Thank you for your support.  

Vikki 

(That Purple Mom)

*****

Please visit my etsy shop at

www.etsy.com/shop/VikkiLawrenceShop 

Jul 22: Cluster of Seizures

Weslee hadn't really had many bad seizures lately. Some absence, some simple partial.

I was upstairs whrn I heard a crash downstairs. By the time my tiny brain woke up to remind me what that sound was, he was coming out of it. And unfortunately, had just opened a bottle of juice, which I tried to clean up. Seriously, a mess.

It sounded like a clonic or absense (paralyzed) followed by a gelastic.  But at least he didn't get hurt.

I made him run up to his safe space (his bed), and in less that 15 minutes, I caught the end of ... something. looked like a kinda short gelastic. I gave him a rescue nasal spray. Had a feeling he wasn't done.

Guess who was right.

(Vid shows the end of seizure #2.)

About 20 minutes after the 2nd one, he had come into the hall outside his bedroom. Started to tell me he was apprehensive about going into the bathroom (to brush his teeth). His voice trailed off. I looked up and started to sprint. He fell backward, stiff as a board, then momentum threw him into bathroom. His back shows the tale. 

He had an absense (or clonic or Todd's paralysis) followed by a drop seizure.

Even on his worse tantrum-ing day, he doesn't deserve this.

........

Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.