May 14: A Decent Day

I was still feeling pretty rough yesterday so am very thankful Weslee's seizures didn't cluster. It was a somewhat mild day for him, thankfully.  As I slept, he had a typical day ... multiple calls with his online friends, worked on a video he is making (crazy pasta??), and took his meds on time. He didn't eat much (just cereal, I think), so around 9 p.m. I roused myself to scramble some eggs with cheese and served them with a few apple slices. He practically inhaled them so that he could take his nighttime meds at 9:30.

So thankful when he has a decent day, with only a few mild seizures and friendships that aren't "mom"!

.......

Gave Weslee a haircut on Sunday. It turned out so bad that he wouldn't let me take a pic! Will take him to a professional when I can. Meanwhile, this pic shows what it is supposed to look like!!

........

Weslee needs more brain surgery for his seizures.  Please go to his Medical GoFundMe or to our Paypal ... Thank you.

About Me and Us

 Hiya. Thanks for stopping by.

I am Vikki Lawrence, mom to a 26 year old (mentally and emotionally 11 years) autistic young man who has intractable (non-curable) epilepsy. Nearly everything I do is for him so get ready for me to mention Weslee a LOT.

Why am I called "THE PURPLE MOM"?  A cashier recently asked why I wear so much purple (all day, every day.).  After I explained, the next time I saw her, she called out "Hi there! It's the Purple Mom!" So, it stuck.

To promote epilepsy awareness, I have worn purple EVERY day since November 2013. Yes, every day! This includes hospital stays for which I wrote on my bod in purple "perm" marker because I had nothing on but a hospital gown. 

Having purple somewhere on my body every day since 2013 has served a purpose. People who see me on a regular basis (and even others) often stop me to ask why I wear so much purple. Clothing, purses, coolers, jewelry, luggage, face mask, etc.

To queries about my color choice, I briefly explain my son's epilepsy journey, and how it all began with an overwhelming amount of deja vu episodes, for which every doctor ridiculed me about. "It's nothing", they would tell me. "Stop being such a worrier."

It wasn't until he had his first BIG seizure (tonic clonic aka grand mal) that an Emergency Department doc told me his multiple deja vu episodes were actually simple partial seizures. Finally an answer!

I wrote about our journey in my book, "Epilepsy: One Mother's Perspective".

(More to come.)

I hope you bookmark this page and check back often.  Enjoy!