Showing posts with label Napping. Show all posts
Showing posts with label Napping. Show all posts

Typical Day for Epileptic

Weslee wakes up at 8:30 every morning. (It's an autism thing). He goes downstairs to eat breakfast (weekdays he has cinnamon Life cereal, weekends he has gluten free donuts and a blue machine juice). He takes his morning seizure meds at 9:30. Goes back to his room, and at 10, he comes into my room for his epidiolex (prescribed CBD) oil. Then he goes back into his room where he usually takes a nap...anywhere from 30 minutes to over three hours.

It doesn't matter how much he slept at night. His average nap is over two hours.
Then at 9:30 at night, he takes his night seizure meds and at 10, his night epidiolex.
I hate that despite him taking six different seizure meds and me tracking all of his different kinds of seizures, times, lengths, symptoms, post-ictal length, etc ... that we (1) can't figure out triggers, (2) can't figure out where in his brain they are happening, despite 12 or so surgeries and much of his brain gone.
Anyhoo...here is a pic I snapped of him napping earlier.