Nov 23: Weslee's Seizure Cluster

This is Weslee, my 29 year old child. He has autism, ADHD, and intractable seizures. 

This vid was taken early in the morning (~2 a.m.) on Friday Nov 21. He had had troubles getting to sleep, so I went in to see if he wanted a sleeping pull (prescribed).

I saw he had been having a cluster of seizures that continued to last over another hour. Mostly gelastic plus what I call the "wiggle worm".

Had to give him his rescue nose spray and yes, a sleeping pill. A lot of sleep is absolutely crucial for an epileptic like him.

He has had an increase of seizures since my health began to rapidly decline, and my cancer diagnosis. Stress, I assume.

#ThatPurpleMomcom 

#gelasticseizures

#uterinecancer

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Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share... PLUS .. please go to his Medical GoFundMe or to our Paypal ... AND please visit my etsy shop at www.etsy.com/shop/VikkiLawrenceShop .. 

For Weslee's regular and daily needs, please visit: Weslee Lawrence's Needs (WalMart) List.  Thank you.

Aug 18: After and During Seizure

I hadn't been home for too long. I had been out running errands, including picking up some prescriptions that I had troubles getting in on time. Briviact: two different dosages. I gave him the missed pills right away and hoped the delay of only about 8 hours wouldn't be a big deal. (Due at 8:00, given at 4:00).

Boy, was I wrong.

So I'm in my bedroom with the door closed because, you know, covered in sweat. I had a couple fans going ... just trying to cool down.

Weslee bangs on my door. "Mom! Mom!", he cried and boy, it sounded urgent, so I open the door (yes, I was dressed). He had glazed looking eyes, he was drooling, and I knew he'd had a seizure. After all of this time, I, of course, recognize the signs. 

I quickly guided him to my bed and I started the video within seconds so this is it. 

It's obvious that he cannot miss even one dose of his Briviact. That medication is the latest that we added to his lineup, and I'm hoping that during his next appointment, we can possibly up it by 50 mg, and maybe that will help mitigate the seizures. Who knows? It is just a guessing game at this point.

He is now in his safe space (his broken bed). I brought him up some 'dinner' (a string cheese and a cup of strawberry banana V-8 juice.) Protein, dairy, fruits and veg. A super healthy meal, although small.

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Weslee needs more brain surgeries for his seizures.  To help, please like, follow, subscribe, comment and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.

Apr 3: Seizure Confusion

Can't believe I am writing this.

My post from yesterday showed Weslee seizing. I call it the 'wiggle worm', but it is a something plus a gelastic at the end.

Because it wasn't a tonic clonic, what many people mistakenly believe is the only kind of seizure, one of those people said he did't really have a seizure. That he was playing around.

I understand that. I do. But this is soooo wrong. On many levels.

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Yes, he was seizing.

No, he wasn't playing or pretending.

Yes, he knows he is seizing.

No, he can't control it.

Yes, I am sure.

No, I am not lying to get sympathy.

No, I would never choose this life.

No, Weslee isn't an actor.

The flash is too bright, Mom!

Better, but I'm on the phone, Mom!

ETA 3:59 pm: I was supposed to see someone today for vomiting blood last night, but can't leave W. (Having a large cluster of seizures.) He doesn't know about the skipped tests. I won't put that on him.

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Please help with Weslee's medical expenses. Click here.  Thank you.

Apr 2: Wiggle Worm Strikes Again

Weslee had had s relatively light week of seizures, until just s few moments ago.

Three 'wiggle worm' seizures in about 4 minutes, with a 4th shortly after I took the below vid.

Gonna be a long night.

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Please help with Weslee's medical expenses. Click here.  Thank you.

Another Cluster of Seizures

Weslee was downstairs, trying to eat while on the phone with his friend. I was upstairs being miserable with a health thing. I suddenly heard W having a gelastic (laughing) seizure. I called his name several times, msking my way downstairs. He would have answered if possible. 

The cluster didn't last long ... 10 minutes or so, but the seizures kept rolling through. They were mostly gelastic but a few of his "wiggle worm" slipped by.

I gave him a rescue med (I have them stashed everywhere here st hime and in my purse) then got him upstairs to his 'safe space' when I could.

This vid shows him about 10 minutes after he hunkered down in his safe space... his bed.

https://youtu.be/35wiTYmb6ko?si=cHh6ieJfnHycmnYK

ETA: W has had several more seizure cluster by now (4:40 p.m.). He is trying to stop them by pulling at his hair.  His brain can't be reasoned with when in this state. My sweet boy.

Night of Seizures

It's been a while since Weslee has had a cluster of seizures at night, but tonight broke that string. At a little before 2 a.m., I heard the tail end of one. Walked in to him saying he still hadn't gitten to sleep.

We have a deal where if he is still awake at midnight, he can come get a sleeping pill from me. It had been a while since he had to so I assume it slipped his mind.

I get the pill from my room. By the time I got back to him, he was having another seizure... a combo of gelastic and wiggle worm. He got the pill down between seizures but by the time 2:26 hit, I knew he would need the rescue nose spray. Geez, he hates that, but I didn't want to wait the usual half hour.

Here at 2:44 a.m. ... still waiting for the spray to take effect, and the seizures to calm down.

Update at 4:12 a.m. ... ... he is still awake so I gave him something else to help him get to Dreamland. At least the bigger seizures stopped so a big THANKS to the rescue spray!

However, when he doesn't get enough sleep (8-10 hours), it increases the possibility of the bigger seizures.

Standing Wiggle Worm

A bit ago, Weslee stumbled into my room. "Mom", he said, "I can't stand this. The seizures keep..." and he was off.  Voice and physicalness disconnected. He proceeded to have a standing 'wiggle worm' right then at my doorway. Near the top of the stairs. 

I jumped to my feet but he raced to his safe spot (his bed) while wiggling and threw himself on the bed. (His bed is so broken!). His brain and body had reconnected enough for that to happen.

Had 2 more of these seizures in five minutes. I gave him an extra seizure pill.  Now he is lying back, working on his Fire tablet which gets thunked around during his physically-rough seizures.

Seizures are now about 30 minutes in between. Easier to handle.

Yup, surgery is the right way to go.