A few weeks ago, Weslee started having drop seizures. It's almost every night, and it coincides with the beginning of my severe health issues ... August? September?
I was hoping that it was just a temporary thing, and that he would get over them. Hoping that all of this increased seizure activity was because of stress or concern about my own health.
Unfortunately here we are the first week in January, and not only has his seizures increased but they've mutated. Again.
Weslee and I just got off the phone (a virtual appointment) with his epileptologist's office. Weslee has been speaking about the hurricane of seizures that he's been having lately. (Mostly simple partials.) One after another until he feels like it's a cycle that has no beginning and no end.
He's up to five of one of his seizure meds (a year ago he took only 3 per day of this particular med). He takes a total of five different seizure medicine, plus his nasal rescue spray, which he is taking more often Too.
None of this is helping.
He is also still dropping weight. This really concerns me, because he's tired all the time. He doesn't have energy and basically, he's wasting away. His epileptologist's office is going to contact Weslee's GI doctor to see if they can get him in sooner than March, and she is also going to look into finding Weslee a therapist / psychiatrist.
We have a virtual telephone appointment in a few weeks with his epulepsy team leader at the Cleveland Clinic. They want to know the status of Weslee getting the next couple of evaluations and surgeries up there in Cleveland. I'm going to have to remind them that I'm waiting to get reliable transport to get us there and back. My attempts to fundraise for a working vehicle or at least to get my vehicle repaired, have been completely 100% ineffective.
Meanwhile, poor Weslee is so frustrated. Anxious. Depressed. And some of his OCD symptoms have come back full force. I hate seeing him like this.
I have a migraine. Going to bed.
Thanks for reading.
Vikki
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Weslee needs more brain surgeries for his seizures and I have new cancer diagnosis.
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For Weslee's regular and daily needs, please visit: Weslee Lawrence's Needs (WalMart) List. Thank you.
