June 1: Complications

Weslee has had a few difficult days. Not just a bad cold and cough plus seizures, but he doesn't feel like eating so his weight is quickly dropping. Sudden bursts of anger pepper the days which, it appears, is a prelude to more frequent and intense seizures like a tonic clonic, and a "night time" embarassing event.

I only put it together when I noticed that 4 out of 7 days had those rage days. I noted those outbursts on my personal calendar (no pic) and not in his seizure diary (pic included).

This past Friday night was a doozy, involving a bedroom door slam and the whole building shaking. I watched him more closely after that.

Saturday afternoon, he confessed a situation had happened overnight (I dont want to embarrass him but you can guess), and he felt he had 'passed out' and thinks he had a tc (tonic clonic) while he slept.

Oh, and his bed is completely broken now. Too many times falling on it during seizures. I ordered a cheapo super duper sturdy metal frame from Amazon. Should be here on Tuesday. Paid with a credit card so I really need to get my June products listed on Etsy to pay it off.

Last night before bed he said he doesn't think the meds are working any more. Great. Just great.

I will call his epileptologist on Monday. Tell her all of this.

That is it for now. Have a good day.

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Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.