As a caregiver of someone with epilepsy, there are a few sounds we don't ever want to hear.
- The thud of a body hitting the ground
- The crunch of head hitting cement or a bathtub
- A seizure alarm blasting loud enough to get our attention
- The slurred speech of a person climbing out of a nasty seizure, like a tonic clonic (grand mal)
- ..and what I awoke to yesterday: a seizure happening on the toilet, (or conversely, YOU on the toilet and you hear a big seizure happening in another room.)
Weslee really didn't want me coming into the bathroom to check on him, but I over-ruled him.
We already have heightened hearing for unusual sounds, but you want the person to at least appear to have privacy. You check but his body has fallen to the floor and you can't get the door open.
The epileptic will come back from seizure-land, embarrassed because going on the toilet is a very intimate situation .. pants down ... etc.
So... that was the start of our yesterday and it went down from there. He had so many clusters that by early afternoon, he had taken two extra doses of a seizure med, and when they didn't work, his rescue nasal spray.
He kept falling asleep. Couldn't resist snapping this pic.
P.S.: I solved the door thing by placing a big blackout curtain across the bathroom doorway. Door stays open, giving privacy, and it allows me to reach Weslee quickly.
Before we came up with that idea, he had a nasty tonic clonic behind a closed bathroom door, hitting his head on the tub on the way down. I couldn't move him (he blocked the doorway) but did reach around enough to pat his toe, try to talk reassuringly while watching a pool of blood spread.
A trip to the ER happened as soon as possible. He had broken his nose.
........
Weslee needs more brain surgeries for his seizures. To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.
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