Jul 7: Fought Sleep

NOTE: This is OUR experience. Consult your own epileptologist (neurologist specializing in seizures and epilepsy).

Weslee's epilepsy consists of several types of seizures, many meds, and various but NOT consistent triggers or causes. Sleep, or lack thereof, can often start a day (or few) of seizure clusters.

Of course, getting a full night of sleep is absolutely NOT a guarantee that he won't have seizures that day. His epilepsy is intractable. Despite 12 brain surgeries, a VNS, experimenting with meds and med combos, and carefully tracking seizures and possible causes, we are no closer to figuring out how to stop his seizures than we were in 2011.

Back to the sleep thing: We have some work-arounds when he can't get to sleep but telling a 28-year-old man/child to get to bed doesn't help. I have to tread very lightly in how I approach the subject, especially since arguing is yet another trigger.

This pic shows what happens when you really really REALLY want to watch videos. You binge until sleep forces you into DreamLand.

I thought he went to sleep around 11:30. And he might have. No idea.

Heard what sounded like a seizure so checked on him at 12:45 a.m.  Light was on, tablet was where it dropped, no nighttime music was going, and no evidence of a seizure. Was just him sleep-talking like he does most nights. 

Left his tablet on him (needs his sleep more that I needed to clear off his bed) and only turned off his light.

No clue when he actually fell asleep. I just hope he gets a full 8 hours because anything less could bring a day of seizure clusters.

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Edited at 7:10 a.m. to add: He woke up very confused at around 6:45. That means he got around 6-7 hours of sleep. He does better between with 8-10, so right on the cusp of what he needs. Yup. I will be on high alert today.

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Weslee needs more brain surgeries for his seizures.  To help, please like, follow and share .. PLUS .. please go to his Medical GoFundMe or to our Paypal ... Thank you.