Weslee gets so tired during the day from constant seizures that he often needs a nap. Voluntarily. I snapped this pic just a bit ago. He put himself to bed early, right after evening meds.
This sweetie is losing hope. He is being bombarded with tiny seizures all day. We think they are simple partial seizures but he can't really describe them.
Weslee is getting very sad about the possibility of never feeling any better, and about being stuck in a safe place for the rest of time.
I hate that. This. All of it. I want my sweet, happy, loves-life kid back.
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