Appointment with Epilepsy Specialist

(Link Repaired)

My son, Weslee, is 27 years old, going on 12. We have autism, OCD, and uncontrolled epilepsy to thank for that.

If you follow me on any social media, you may know that Weslee's seizures haven't gotten any better, despite brain surgeries, medications, therapies, diets and the latest, a VNS device implanted. He has a lot of break-through seizures of different varieties, and all with no forewarning.

It's gotten to where he has a "safe place": his bed.  He feels (as do I) that if he is already in bed when he has a seizure, he won't fall down the stairs (again), or back into a door and put a hole in a wall (again) or hit the edge of the bathtub on his way down (again again and again).

Weslee in Emerg Dept after a seizure knocked him against the bathtub and floor. Nose broken. 

Weslee's local epilepsy doctor and team (he's had 3 or 4) have run out of suggestions, so they have recommended him to the Cleveland Clinic. He has an appointment there next month, but we need help getting there.

• My car won't make it there (no brakes, engine messed up). I will need to rent, get mine fixed (estimated to be over $5,000) or get a "new" vehicle (see below ps).
• Gas for vehicle.
• Hotel for first few nights for us both, then just for me if I can't stay in his room.
• Meals for us both, until he is admitted to a room, then just my meals.
• Hot spot because we will need a secure internet service, and I don't trust hospitals.
• Other incidentals, like getting him a new movie to watch, or anything else I need to get to keep him busy during his EMU (epilepsy monitoring unit) stay. 

So what do you say. Can you help us?

Help Weslee Get His Life Back: 

paypal.me/VIKKIWESLEELAWRENCE

Thanks.

p.s. Weslee and I are losing faith and find it hard to believe that we can't even mitigate some of his seizures. He is tired of all the medications. Of keeping an eye on the clock to take them at the right time. Of being afraid to walk down the stairs if I'm not around. Of falling and hitting his head or breaking his nose...again.  

He wants to get in a van and just start driving. To meet people he has talked to online. To take a "safe place" with him ... in the form of a special-built camper van.  Believe me... this is WAY down the line as we have to get through the Cleveland Clinic tests and so forth first.