Another day of clusters of seizures. At least he was already at his 'safe space' when they happened.
Anyway...
Weslee just came up with a great idea. He thinks we should take people's questions and answer them. Maybe do a little interview. Anything about seizures, being caretakers, daily life, figuring out side effects or triggers, etc.
And we would answer to the best of our ability.
As a reminder... I emphatically state that I am NOT a medical professional / doctor, expert researcher, or backed by any epilepsy, seizure or neurological group. I am just a mom who was thrown into this world when my son crashed into the floor, convulsing and bonking his head while turning blue from lack of oxygen. That was in 2011.
Thus, our lives now revolved around 'all things seizure'. We began our search for triggers, struggle with an altered new life, med experiments, many brain surgeries and the TONS of research I did.
And me, wearing purple EVERY DAY since 2013 for epilepsy awareness. Not an exaggerated statement.
Already being a dabbler in writing both fiction and non-fiction, the natural inclination was for me to record our situation, in the hopes that maybe we can help others. ( Epilepsy: One Mother's Perspective ). I also published journals to track seizures and other data, and a book about dealing with seizures in a school setting. (I am working on whole companion book series.)
Meanwhile, back to this question and answer thing...
What do you think? Is there any interest at all?
.....
Please help with Weslee's medical expenses. Click here. Thank you.

No comments:
Post a Comment